23 lines
1.4 KiB
Markdown
23 lines
1.4 KiB
Markdown
---
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title: "Ethics in research and clinical translation"
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contributors:
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- Bert Heinrichs
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- Charles Rathkopf
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sites:
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- fzj
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topics:
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- ethics
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weight: 1000
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---
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{{< lead >}}
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Ethical, legal, and societal considerations are embedded within ABCD-J's research, technology, and translation to clinical practice.
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This includes the development of trustworthy technologies and machine learning methods, the design of clinically relevant tools and workflows, and the governance and stakeholder engagement required in data-driven research environments.
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These efforts ensure that scientific innovations are aligned with societal values, clinical needs, and responsible technology development.
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{{< /lead >}}
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Ethics and law in ABCD-J is an integral part of research and technology development, shaping the design and governance of ABCD-J's data infrastructures.
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Principals such as privacy-by-design, transparent consent models, and responsible data management and use are embedded from the outset, supporting trustworthy and sustainable research.
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These questions are particularly relevant in clinical contexts, where data-driven evidence and patient and physician perspectives must be integrated into decision-making.
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ABCD-J therefore follows a participatory approach that actively involves clinicians and patients, ensuring that new methods are rigorously evaluated, ethically deployed, and aligned with clinical practice.
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